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Join us at one of our fundraising events throughout the year. 

Sturge-Weber syndrome is a rare disease; therefore, it is not widely studied, and there is little incentive for research and development of a cure. But, with your additional support, you can join us in contributing to research funding for better treatments and a cure for Sturge-Weber syndrome. 

To advocate, educate, and fundraise for awareness, better treatments, and a cure for Sturge-Weber syndrome.

 

 

We are a nonprofit, tax-exempt, nonoperating, private foundation under IRC section 501 (c)(3). Current financial statements available upon written request and at GuideStar.org .


 

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